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Hello myname is Ashlee. After giving birth to my son in 2004 I started losing my eyesight. In 2006 I would be given the proper diagnosis of NMO. After having my daughter in 2012 I decided to get involved in the NMO community on Facebook groups. In 2018 I started my own women support group and a pregnancy support group on Facebook. I quickly realized there needed to be more support for the patients. In 2020 I founded A Breath of Hope foundation for NMO. I have made it one of my missions in life to educate and advocate for NMO.
Hi my name is Marie and I was diagnosed with NMO in 2018 after experiencing total blindness twice in the two years prior and my eyesight not fully returning. Finding a lot of information on a rare disease is difficult. I was scared and confused and that’s when I found Ashlee Olsen on FB. Ashlee was a godsend to me to ease my mind. She was able to tell me her experiences and what to expect moving forward. She could also tell me where to find more information and resources when I needed it. I decided to get involved because I don’t want anyone else to feel the aloneness and terrifying feelings that I felt when I was diagnosed. Rare diseases do not get the same benefits of more popular diseases like MS or Cancer because no one has heard of our disease. Spreading knowledge is the key and I look forward to helping A Breath of Hope foundation for NMO and the community in any way I can.
Hello I'm Keisha Harmon, but my friends call me Ki Ki. I'm 27 years old, I was diagnosed 16.5 years ago. It started with severe neck and back pain, tinder skin, all over body weakness and multiple trips to the ER. I was told I had cancer, diabetes and multiple sclerosis before I was given the proper diagnosis of NMO. it took my doctors months to figure it out. When I was diagnosed I was the first person since the 70's in my state to have NMO. I was just a kid going through all this scary stuff. There were no support groups or foundations when I was first diagnosed. I learned everything I could about NMO, so I could advocate. NMO can be scary, but you don't have to be scared or feel alone! I personally will walk with you through your journey, & if I don't know the right answer, I'll get you in contact with someone who does, we'll figure it out together!💚
Hi I’m Christa Craig and my daughter is Cori Craig, better known as Courageous Cori. Cori was diagnosed with NMO a month after her 2nd birthday. Cori has a very severe case of NMO with many failed treatment options, she’s had 16 attacks in 2.5 years time. Finally she started a new chemotherapy June 24, 2021 and has been relapse free ever since. Because she has had such a tough battle, now that she is stable and responding to treatment, I am eager to help others in this journey fighting NMO.
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